We didn’t end up having our visitor. Gotta say, I’m relieved. I want to help where I can, but I’m glad we didn’t have the exposure. I’m also glad we didn’t mention it to the kids, as they would’ve been crushed.
I’ve been busy today. I sewed 20 masks for my daughter’s school. Since masks are required, our district has been asking people to help out. I donated a bunch to the district office to distribute already, but since the girl may be going in-person, I wanted to make sure her class/school has plenty. I’ve also been getting a bottle of hand sanitizer here and there, so we can donate that to her class, too. The good stuff is finally in stock again. I never thought I’d be so happy to see Germ-X or Purell on the shelves. That watery garbage sanitizer practically took my breath away.
The girl had an appointment with her neurologist yesterday. Last year she was diagnosed with neurofibromatosis, and she has to do yearly visits. She was supposed to go a few months ago, but ya know. She had to have a full body exam to look for cafe au lait spots and tumors, and my husband quickly discovered that BG chose to ditch her underwear before going.
(The compression underwear is a new strategy to keep her from putting her hands in her pants all the time. They’re like bicycle shorts and tougher to get into. Sigh.)
My husband said her body was clear of any tumors and some of her spots had faded away. He said the doctor seems skeptical now of whether she has NF. My husband was diagnosed as a kid, so that factored into BG’s diagnosis. She had many of the classic clinical symptoms — large head, small stature, clumsy, freckling in odd spots, and a bunch of cafe au lait spots. Between that and my husband’s diagnosis, that was enough for a clinical diagnosis for her. I told my husband he should get genetic testing done, and if he’s clear, then she would be, too. That would be awesome, as that disease can be pretty awful. (Google if you want, I’m not going to post the pics of the severe cases here.)
My husband and the girl’s conversation yesterday:
BG: Why am I going to the doctor?
Husband: To get a check up for neurofibromatosis. [Details on what it is and the symptoms, including clumsiness.]
BG: Clumsiness? So Mommy has it, too?
On other medical stuff, at the girl’s well visit last week, her doctor and I discussed medication to help with the extreme tantrums. They’ve been bad and tend to be more violent lately. (I’ve had my share of bruises over the past few months, and my husband and son have had a bunch of bites.) Her doctor is going to try her on an ADHD medicine and see if that helps. I hate, hate, hate the idea of this, but I’m willing to give it a trial to see if it helps there. It has been a year since we first talked about it, and we opted to wait to see if therapies and another year of development would help (and was also hopeful that the tonsillectomy would since she’d sleep better), but it hasn’t overall. Fingers crossed on that.
Three days of posts in a row. B-)