So Long Tonsils

I talked to Baby Girl’s teacher about things. She said she admired how we advocated for Norah and told me some things she is doing in the classroom to help. She admitted not knowing a lot about autism, but said she is researching strategies to help. She told me her goal is to minimize situations in the class that may be stressful for BG and reduce sensory overload (or meltdowns).

That was good to hear, of course. She also told me that she got an FM system for the girl . I’ve never seen one, but apparently it’s supposed to reduce background noise and deliver the teacher’s voice to BG. She said some kids were curious about it, so she explained what it was and BG seemed happy with it.

The teacher also talked about how they would handle any issues that came up and said that either she or her assistant would take BG to a quiet area to help her calm down while the other stays with the kids. She asked for suggestions for strategies and other changes she could make in the classroom that might help. I’m so happy to hear all of this, because while getting BG through the school day without a meltdown is important, reducing that frustration so she isn’t completely on the verge of one after school is important, too.

Also, the principal said that while she may not get an IEP and be eligible for certain accommodations through the school district, she’ll have a personal education plan for the school itself. It’s a charter school and receives state funding, but they’re able to make their own rules. (Like allowing her to start late if we had chosen to do so and letting her leave early for her therapy appointments.) The district psychologist has no control over that, so I am assuming that FM system was provided that way since she’s technically supposed to haven an IEP to get one. Take that, asshole.

Good stuff.

The girl had her tonsils out yesterday. That poor child seemed like she was on the verge of panic attacks multiple times over the past few days. She was terrified of having the surgery done. She wasn’t worried about pain — that never came up — but the idea of having them removed scared her.

We expected yesterday to be very difficult, but BG was in a good mood when she got up. She didn’t seem too nervous, even when we got to the hospital. After we checked in, a nurse took her back to a room that had the Disney channel playing. We got her dressed in a gown and then the doctor and the anesthesiologist came in to talk to us. When it was time for them to take her back, she didn’t cry, but I sure did when I watched them wheel her away.

We knew the surgery would be quick, but were surprised when the doctor came out half an hour later. I expected him to say something was wrong and they couldn’t remove the tonsils or something, but he said they got him out and she did great. It took longer for her to wake up from the anesthesia than it did for the tonsils to be removed.

When we went back to the recovery room, BG was crying a little. The nurse gave her some water and we rubbed her back. She then asked:

“Where’s my Barbie dream house?”

Um, what?

“What Barbie dream house?” I asked.

“The one I’m supposed to get after surgery.”

“But you don’t even like Barbies. We don’t have a Barbie dream house, sweetie.”

This made her start crying really hard. “But I want my Barbie dream house!” she wailed. I can only imagine how confused we must have looked to the nurses since our daughter, who can’t stand Barbies and other “girl stuff” was crying over a Barbie dream house that she thought she was going to get for some reason.

My husband asked if he should go get a Barbie dream house for her. I looked it up and they cost almost $200, which is half of what we paid for the surgery. I shot that idea down. She did manage to get him to stop by Target and get another gift for her, though.

The doctor said that BG would need a week, maybe two, to recover. After a half hour nap yesterday, she was bouncing off the walls. Same today. You wouldn’t even know she had surgery. I shouldn’t be too surprised since she’s not one to respond to pain much. Even when she had strep throat, she never complained about it hurting. We took her to the doctor because she had a fever and was lethargic and found out that way. Hopefully she continues feeling well and it isn’t a delayed reaction!

14 thoughts on “So Long Tonsils”

  1. I’m so glad the surgery went well and BG is okay 🙂 Though I got a surprise when you said you had to pay. I know adults have to pay for medical treatment over there but I assumed it would be free for kids at least, since they don’t have jobs…
    Yay that the school is helping out even if the district psychologist was… let’s be polite here… “unhelpful” 🙂

    Liked by 1 person

    1. Ha! The only reason it was so “cheap” (for us) is because we’ve already spent $2100 on her medical bills this year and have an out of pocket max of $2500. And we have to pay $700 per month just to have insurance. I don’t know how people support such a system.

      Liked by 1 person

  2. Hey there fellow Mom! I have been following your story about BG’s new diagnoses. Congrats on being blessed with an “AWESOME” child on your hands. I am a Behavioral Therapist and that is what we refer to our students with autism as. They are all awesome and special in their own unique ways, it’s amazing. If the school is not being of much assistance I would suggest you look into your insurance covering services for a Board Certified Behavior Analyst to come to your BG’s school or home for some Behavioral Therapy [BT] to help her transition better and reach her highest potential. Honestly from my 5 years of BT experience , schools are often not too helpful in these situations so don’t set your expectations too high; and most of all stay positive! if you have any questions or want more info please contact me as I do have experience in this field with manyyyy diagnosis and working with children.

    Liked by 2 people

    1. They are awesome indeed. I never fail to be amazed by how her brain works ❤

      Thanks so much for the suggestion! I will look into that. It never crossed my mind that we might be able to use insurance to get outside help to come in. Will do and thanks again 🙂

      Like

  3. I’m glad the surgery went well and that she is once again bouncy! But what really makes me happy is her teacher’s attitude. I have a friend in the UK whose son has Asperger’s Syndrome, and the schools there are most uncooperative, providing no special considerations at all. So, it sounds like her teacher is on top of it, or at least is trying to be.

    Liked by 1 person

    1. Thanks! I’m glad she’s going to a charter school for that reason. I don’t think a larger school would be nearly as helpful. Her teacher has much smaller class size than is typical, plus has an assistant, so she can be on top of things.

      Liked by 1 person

  4. I am so happy for you, for all the blessings this week. We have an autistic girl at church who uses the FM headphones all the time. It really does help her. Since she got them, it’s like a whole new girl, smiling and happy instead of stressed and sobby. I’ve even tried noise cancelling ones to block sound and find they help my ptsd sometimes. Sometimes, I just wear my stereo headphones not plugged into anything. people tend to leave you alone then, and it dulls the chaos enough that my brain doesn’t get overwhelmed. Funny, I never liked dolls or “girlie” toys growing up…then, I married, bashed my brain, and now I love them. Hubby even bought a roll of bubble wrap for my porcelain sailor doll so she doesn’t get broke in the move. I used the whole roll…that’s how paranoid I am. She was the last thing my foster day “Poppa Bear” gave me. Oh, Btw, we have our move date, Oct 17-18… so now we have 18 days to move! YEEHAA! 🙂

    Liked by 1 person

    1. That’s so cool! I am so excited about them AND her teacher’s eagerness to try them with her. I sometimes use headphones myself for quiet. I can’t hear that well, but when I’m trying to focus, it’s like every little background noise is amplified. They help so much.

      That’s wonderful, I’m so happy for y’all! ❤

      Liked by 1 person

      1. I go to McD’s in the afternoon for internet while I wait for Hubby to get off work. It’s the same hours the high school students are there. The headphones preserve my sanity. If they are so loud I can hear them over my music (loud due to hearing issues) and the headphones, then I get cranky with them. They really don’t like it when Mrs. Bear takes off her headphones and nitches at them. That’s usually After I’ve given them the “mom” look. hehe. And you are right, they also do help me to focus on what I’m doing amid the chaos, too.

        Liked by 1 person

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