Referrals Galore

A couple of months ago, the girl got referrals for speech therapy, occupational therapy, and to a behavioralist to be evaluated for autism, ADHD, and whatever else. At the last appointment the doctor also placed referrals for a neurologist and play therapist.

Hole. E. Shit. That’s a lot of stuff.

It’s all warranted. The doctors said they can barely understand half of what she says. I know she struggles with some of her sounds big time, but didn’t think it was that bad, but maybe that’s because I’m used to her. (And damn, her grandmother is offended as hell by that.) She has a large vocabulary and speaks using mostly grammatically correct sentences, too. But so many sounds give her trouble. She definitely needs help working on sensory issues and motor skills. And maybe a behavioralist will pick up on something. I feel like four is too young to start looking at ADHD. I’m by no means an expert, and will keep an open mind, but bleh.

The play therapy is to work on what’s causing the meltdowns and to help us help her control it better and to identify triggers and whatnot. I imagine that between that and working on sensory stuff in OT, that will go a long way.

And that brings us to the neurologist.

The doctor wants her to be checked for neurofibromatosis, which is a genetic disorder that can range from being mild to causing someone to develop tumors all over, among other things. She has some of the symptoms (large head, short stature, cafe au lait spots, behavioral issues), plus her dad was told that he had it as a kid. (When he followed up on it as an adult, the doctor told him not to worry about it. I don’t really know much about it, so it hasn’t been on my radar.)

If her dad’s doctor was right as a kid and he has it, then it definitely hasn’t caused him any real problems, especially as an adult, so that’s comforting.

The doc suggested letting her do a 4K head start program next year so school would be free and she would receive the above services at no cost to us, but I looked at it online, and it looks like your income has to be below a certain amount. It’d probably be better for her to stay with her current school and do private therapies, anyway, I’d think. As much as she hates changes in her routine/environment, it’d probably be good to keep that constant while we’re dealing with everything else.

Whew.

Her school year is going well, though. She (and we) love her teacher. She has one of the most vibrant personalities and is great with all of the kids. The girl has two friends this year, and that makes me so damn happy. Both of them are boys (she says the girls won’t play with her, but since she likes to be the boss of everything, I suspect that has something to do with it!), and she talks nonstop about her friends. Her only complaint with one of the friends is that he sometimes wears a jacket with a sports team she hates on it. She said she tried to get him to stop wearing it. #TrueFan

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4 thoughts on “Referrals Galore

  1. I can see where that would all be deer-in-headlights inducing, let’s just go get pizza instead inducing. But, it actually is kind of wonderful that all of these resources are popping up. You know I’m not a Pollyanna, but from my own experience that even with insurance I can’t get ANY professional help, in the USA, in 2018, in NOT the total middle of nowhere, we know that it could easily be the case where folks just shrug and hand out a pill for her. I hope all of this works out for y’all.

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  2. I’d look into the K4 options, because here, when income isn’t met, yes, it’s free, but for everyone in the middle section, it’s on a sliding scale, and many of the people who work for that service also work in private sectors, and this can produce long-term relationships that benefit children resistant to change. You may find that after sliding scale and insurance play in, you significantly benefit from it. For instance OT is ongoing and changes with development and if BG has a good relationship, it will save you stress.
    That’s my food for thought.
    BUT I will also remind you that many of these things ‘grow’ away. It is likely you’ll need to keep that grain of salt/eye open attitude to pick your battles — to keep her (and you to some extent) from feeling like a project.

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